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  1. About Us
    1. About Us
    2. The Team
    3. Member Organisations
    4. Governance
  2. Research & Knowledge Mobilisation
    1. Research & Knowledge Mobilisation
    2. Impact
    3. Social Care and Social Work
      1. Social Care and Social Work
      2. Social Care - Kent, Surrey & Sussex Region
    4. Starting Well: Children's Mental Health
      1. Starting Well: Children's Mental Health
      2. Meet the team
    5. Primary and Community Health Services
      1. Primary and Community Health Services
      2. Meet the team
    6. Living Well with Dementia
      1. Living Well with Dementia
      2. Meet the team
    7. Co-production
      1. Co-production
      2. Meet the team
    8. Public Health
      1. Public Health
      2. Meet the team
    9. Digital Innovation
      1. Digital Innovation
      2. Meet the team
    10. Economics of Health and Social Care
      1. Economics of Health and Social Care
      2. Meet the team
    11. Implementation
      1. Implementation
      2. Meet the team
    12. Rapid Evidence Synthesis
      1. Rapid Evidence Synthesis
      2. Meet the team
    13. Knowledge Mobilisation
      1. Knowledge Mobilisation
      2. Meet the team
  3. Public and Community Involvement
    1. Public and Community Involvement
    2. What is PCIE?
    3. Getting Involved
    4. Support for researchers
    5. Resources
    6. PCIE Guide
      1. PCIE Guide
      2. Contents
      3. Introduction
        1. Introduction
        2. An overview of ARC KSS
        3. Who can help you with PCIE?
        4. Terminology and PCIE
      4. Why and When to do PCIE
        1. Why and When to do PCIE
        2. Why involve members of the public in research?
        3. Why do members of the public want to get involved in research?
        4. When to get members of the public involved?
      5. How to do PCIE
        1. How to do PCIE
        2. Communication and Accessibility
        3. Budgeting
        4. Planning for involvement and engagement
        5. How to recruit members of the public
        6. Inclusive Research
        7. Approaches – different options for undertaking PCIE
        8. Facilitating meetings and Group dynamics
        9. Ethics
        10. Feedback
        11. Impact and Evaluation
      6. Examples/Case Studies
      7. Appendix/Useful tools
  4. Learning and Development
    1. Learning and Development
    2. ARC KSS AcademyARC KSS Academy
    3. Learning and DevelopmentLearning and Development
      1. Learning and Development
      2. Learning and Development Finder
      3. Researchers Journeys
    4. MentorshipMentorship
    5. Research communities of practiceResearch communities of practice
    6. Research Week Research Week
      1. Research Week
      2. Research Week 2025: Poster Competition
      3. Previous Research Weeks
    7. NIHR Health and Care Professional Internship Programme South EastNIHR Health and Care Professional Internship Programme South East
    8. Building social care research capacity
  5. Resource Library
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“I don’t see a reason why we should be hidden from view”: Views of a convenience sample of people living with HIV on sharing HIV status data in routinely collected health and care databases in England

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People living with HIV (PLWH) now have near-normal life-expectancy, but still experience stigma, and HIV status is treated as sensitive health information. When UK healthcare patient data is curated into anonymised datasets for research, HIV diagnostic codes are stripped out. As PLWH age, we must research how HIV affects conditions of ageing, but cannot do so in current NHS research datasets. 

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