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The aim of the NIHR ARC KSS Living Well with Dementia theme is to become a leading region for dementia research, translating research to improve care and help people to age well and live well with dementia.
Kent, Surrey and Sussex are in an ideal position to lead on ageing and living well with dementia research. As a region, we have a higher proportion of older people, and people living with dementia and our ageing population is growing faster than the national average.
We have four sub themes to support our aims:
- Enabling routine outcome measurement in dementia to evaluate existing models of provision of memory assessment services– developing and evaluating systems embedding patient-centered outcome measures (PCOMs) into routine practice to determine whether the treatments and services provided improve quality of life.
- Enabling successful physical and cognitive ageing for people living with co-morbidities– evaluating health and care challenges faced by people growing older with co-morbidities including physical frailty, multi-morbidity and neurocognitive disorder.
- Empowering general and community hospitals to manage people with dementia well and the transition from hospital to home (or care home)– development, delivery and evaluation of a systematic package of support for people with dementia and carers.
- Exploring and exploiting the potential of assistive technology to improve quality of life of people with dementia – in collaboration with industry, developing and evaluating untapped potential for assistive technology to improve the quality of life of people with dementia and carers and support them in their homes.
We are also supporting a number of Living Well with Dementia related PhDs across Kent, Surrey and Sussex including:
- Outcomes, hopes and fears for patients with memory complaints but no dementia diagnosis following memory clinic assessments (Brighton and Sussex Medical School).
- Determinants of multiple admission to acute hospital wards for older people with dementia (Brighton and Sussex Medical School).
- Dementia and Alcohol/ARBD (University of Kent).
- 2 x University of Chichester Dementia/Ageing related PhDs.
In our first year, we have been supporting the following research studies including a number of NIHR ARC KSS Covid-19 related studies:
- ADEPT Accelerating Dementia Pathway Technology
- COBALT Combining Memantine and Cholinesterase inhibitors in Lewy Body Dementia treatment trial
- TIHM Technology Integrated Health Management for dementia
- DETERMIND DETERMINants of QOL, care and costs and consequences of inequalities in people with Dementia and their carers
(DETERMIND is funded by the Economic and Social Research Council (ESRC) and the, DETERMIND-C19 project is funded by UK Research and Innovation (UKRI) and ESRC with the support of ARC KSS).
- DETERMINants of QOL, care and costs and consequences of inequalities in people with Dementia and their carers (Covid-19 sub study)
- STRIDE Strengthening responses to dementia in developing countries
- ‘Remote’ Memory Clinic: Responding to the clinical need in times of Covid-19 restrictions - An evaluation of feasibility, clinical utility and safety
- How has Covid-19 affected the quality of life, wellbeing, and care of people diagnosed with dementia and their family carers? A nested Time for Dementia sub study
- Technology Integrated Health Management for dementia (TIHM extension study) - Using Data Science and remote monitoring to care for vulnerable Surrey citizens.
Throughout 2020, and moving forward, we will continue to engage and collaborate with people accessing services, and health and social care stakeholders to understand needs, gaps, and opportunities for research, including emerging priorities as a response to Covid-19.
Remote Memory Assessment Toolkit
The Remote Memory Assessment Toolkit (RMAS) is intended to support best practice in delivering remote services for patients with dementia. The toolkit is aimed at clinicians who assess and diagnose dementia. It has been developed by researchers at Sussex Partnership NHS Foundation Trust and Brighton and Sussex Medical School.
The toolkit is the output from a study funded by NIHR Applied Research Collaboration Kent, Surrey and Sussex (ARC KSS) which aimed to understand patient, carer and clinician satisfaction with and experience of receiving or undertaking memory assessment, during the Covid-19 pandemic.
Alzheimer’s Dementia: Published December 2021: Patient experience and satisfaction with remote memory assessment: Responding to Clinical need in times of COVID-19 restrictions
The impact of the COVID-19 pandemic on people with dementia and their carers
The Living well with Dementia team at ARC KSS are pleased to share key findings, messages and a publication for two studies that explored the impact of COVID-19 on the Quality of life of people with dementia and their carers during 2020.
These findings provide insights into the challenges people faced, and factors that supported their wellbeing, with messages that last beyond COVID-19.
The results will be of interest to anyone involved in supporting people with dementia, including: health and social care commissioners; services providing care to people with dementia - such as care homes; the voluntary and community sector; people living with dementia and their carers; general practitioners and people working as social prescribers or in dementia support roles.
Plos One: January 2022 Covid-19 and the quality of life of people with dementia and their carers publication.