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  1. About Us
    1. About Us
    2. The Team
    3. Member Organisations
    4. Governance
  2. Research & Knowledge Mobilisation
    1. Research & Knowledge Mobilisation
    2. Impact
    3. Social Care and Social Work
      1. Social Care and Social Work
      2. Social Care - Kent, Surrey & Sussex Region
    4. Starting Well: Children's Mental Health
      1. Starting Well: Children's Mental Health
      2. Meet the team
    5. Primary and Community Health Services
      1. Primary and Community Health Services
      2. Meet the team
    6. Living Well with Dementia
      1. Living Well with Dementia
      2. Meet the team
    7. Co-production
      1. Co-production
      2. Meet the team
    8. Public Health
      1. Public Health
      2. Meet the team
    9. Digital Innovation
      1. Digital Innovation
      2. Meet the team
    10. Economics of Health and Social Care
      1. Economics of Health and Social Care
      2. Meet the team
    11. Implementation
      1. Implementation
      2. Meet the team
    12. Rapid Evidence Synthesis
      1. Rapid Evidence Synthesis
      2. Meet the team
    13. Knowledge Mobilisation
      1. Knowledge Mobilisation
      2. Meet the team
  3. Public and Community Involvement
    1. Public and Community Involvement
    2. What is PCIE?
    3. Getting Involved
    4. Support for researchers
    5. Resources
    6. PCIE Guide
      1. PCIE Guide
      2. Contents
      3. Introduction
        1. Introduction
        2. An overview of ARC KSS
        3. Who can help you with PCIE?
        4. Terminology and PCIE
      4. Why and When to do PCIE
        1. Why and When to do PCIE
        2. Why involve members of the public in research?
        3. Why do members of the public want to get involved in research?
        4. When to get members of the public involved?
      5. How to do PCIE
        1. How to do PCIE
        2. Communication and Accessibility
        3. Budgeting
        4. Planning for involvement and engagement
        5. How to recruit members of the public
        6. Inclusive Research
        7. Approaches – different options for undertaking PCIE
        8. Facilitating meetings and Group dynamics
        9. Ethics
        10. Feedback
        11. Impact and Evaluation
      6. Examples/Case Studies
      7. Appendix/Useful tools
  4. Learning and Development
    1. Learning and Development
    2. ARC KSS AcademyARC KSS Academy
    3. Learning and DevelopmentLearning and Development
      1. Learning and Development
      2. Learning and Development Finder
      3. Researchers Journeys
    4. MentorshipMentorship
    5. Research communities of practiceResearch communities of practice
    6. Research Week Research Week
      1. Research Week
      2. Research Week 2025: Poster Competition
      3. Previous Research Weeks
    7. NIHR Health and Care Professional Internship Programme South EastNIHR Health and Care Professional Internship Programme South East
  5. Resource Library
  6. Events
  7. News
  8. Contact Us

We’re updating our website

We are currently updating the ARC KSS website to reflect our new funding and the changes it brings to our programme of work.  These changes will take place over the course of the next few months.

Please bear with us while we work behind the scenes to make these improvements. We thank you for your patience.

In the meantime, if you need help finding anything, please contact spft.arcksscommunications@nhs.net

My Choice, a new information resource for people living with dementia has been launched today (18 April) offering people the information they need to help them live well following a diagnosis of dementia.

The My Choice booklet – is a free, accessible, evidence based information resource, designed by the Living Well with Dementia Implementation team at the Applied Research Collaboration Kent, Surrey and Sussex (ARC KSS) and Health Innovation Kent Surrey Sussex (HIKSS), alongside people with lived experience of dementia, and experts in various areas of dementia care. It aims to give accurate and accessible information in a way that helps people living with dementia make informed choices to support their health and wellbeing now and for the future.

My Choice will be developed and evaluated further, but in the meantime both people living with dementia and support workers delivering care have said it is an accessible, useable, informative document, that they learnt something new, and that they intend to adopt at least some of the recommendations.

Kath Sykes, ARC KSS Implementation Lead said:

‘’A common complaint following a dementia diagnosis is people not receiving the information they need to help them adapt and live well. To address this problem we worked with researchers, clinicians, and people with experience of dementia to develop ‘my choice’ and provide evidence based information in an accessible way. We hope ‘my choice’ gives people both the information and the confidence they need to make informed decisions about how to live well and plan for the future following a dementia diagnosis. Initial feedback has been very positive but we also intend to continue to evaluate and develop this resource’’.

Download My Choice

Review initial evaluation results

For further information or queries about my choice contact This email address is being protected from spambots. You need JavaScript enabled to view it., ARC KSS Implementation Lead.

Recite Me Accessibility Tools